It's been a very mentally taxing month or so. Jan 2nd while I was asleep my blood sugar dropped. My wife woke me up to drink some apple juice (typically it brings me up 30 points or so). My dexcom (continuous glucose meter) had went off at 63. Wife brought my juice in and noticed I wasn't all there. Immediately started to have a seizure. She called 911, Police/Fire/EMT's were at the house within 5 min (so I'm told). When the EMT's checked my blood sugar, their meter showed 58, where mine showed 87ish. Finally coming out of the seizure, I got loaded up in the ambulance and headed to the hospital. I'll note here, I don't remember any of this at all. Getting into a normal room and finally waking up, being able to comprehend things. Dr's said I had a Grand Mal seizure. They did a lot of tests, but no permanent damage was done thank god. My wife is mentally scared from this for sure. My endocrinologist made some changes to my insulin pump and I've been golden since then.
Before this episode, I started having some pain on my left side from the previous surgery to place my dialysis port. Getting in to the see the surgeon, they said I had a pretty bad infection requiring another surgery. This time they had to "externalize" my dialysis port to be ready to use. I want to say this was mid December. Since this was externalized I have to have the port flushed weekly. Also this moves up my dialysis start time to sometime soon (end of Feb, beginning of March). I wasn't planning on starting until April, but whatever I'm alive.
I should really have my internet and cell service because reading horror stories of kidney/pancreas transplants is scary as hell. I struggle most days to deal with whats about to happen. But my wife and close family has helped me through it. I still have a long road ahead of me, hopefully everything works out but we'll have to just wait and see.
My wife says I'm pretty morbid about the whole thing, as I've told her the story about the EOD tech describing his job. I always say, "it's either going to be my problem, or suddenly it's not".